In January 2003 I spent two weeks in a German hospital before I was diagnosed with Wegener's Granulomatosis. This collection contains my journey through a chronic illness. This ebook was written as remembrance for Vasculitis month (May) and to all of those people who have lived with and died from a chronic illness....
|Title||:||In the Shadow of Death: Reflections on a Chronic Illness|
|Format Type||:||Kindle Edition|
|Number of Pages||:||108 Pages|
|Status||:||Available For Download|
|Last checked||:||21 Minutes ago!|
In the Shadow of Death: Reflections on a Chronic Illness Reviews
"Healthy is the default setting, not the guarantee."This author should know. She was a lean, active 41-year-old who ate a healthy diet and walked three to five miles a day, when disaster struck. What appeared to be a mild case of flu quickly escalated into nearly total kidney failure. One nurse told her bluntly that she was dying. Fortunately, a compassionate doctor let her know that he believed that she could win the battle and, with his help, she did. Eventually she was diagnosed with Wegener's Granulomatosis - a rare, devastating autoimmune disease that's treated very similarly to cancer (with similar side-effects.) Today, she's in remission, although her condition is chronic and she must deal with physical limitations - both from the disease itself and from the medications necessary to keep it at bay.This book is a bit of a jumble. Some of the "chapters" are articles that Ms. Bagley has had published in various magazines, newsletters, etc. Ideally, this material would have been reworked into a more coherent whole. However, I'm inclined to cut this nice lady a lot of slack. She writes so well and so touchingly about the effects of her illness, the strong marriage that pulled her through the dark times, and the difficult childhood that left her scarred, but taught her never to give up. By the end of the book, you feel like you've made a friend and that's the greatest compliment I can pay any author.In addition to being a testament to human strength and resiliency, there's a lot of common sense information and advice here which is of value to anyone (patient or family) who must seek medical care for a serious illness. As a Navy veteran, some of her health care has been through the Veteran's Administration and some through civilian providers. She emphasizes what those of us who have been in such a situation already know - the best outcomes depend on a well-informed patient or caregiver who's prepared to speak up. Taking control of your own health care, demanding that full information be available to you and your family, and insisting on making health care decisions won't make you popular, but it could save your life. Along with everyone who reads this book, I'm fervently hoping for a happy future for the author and her husband.