Read Love You to Pieces: Creative Writers on Raising a Child with Special Needs by Suzanne Kamata Marcy Sheiner Online


The first collection of literary writing on raising a child with special needs, Love You to Pieces features families coping with autism, deafness, muscular dystrophy, Down syndrome and more. Here, poets, memoirists, and fiction writers paint beautiful, wrenchingly honest portraits of caring for their children, laying bare the moments of rage, disappointment, and guilt thatThe first collection of literary writing on raising a child with special needs, Love You to Pieces features families coping with autism, deafness, muscular dystrophy, Down syndrome and more. Here, poets, memoirists, and fiction writers paint beautiful, wrenchingly honest portraits of caring for their children, laying bare the moments of rage, disappointment, and guilt that can color their relationships. Parent-child communication can be a challenge at the best of times, but in this collection we witness the struggles and triumphs of those who speak their own language-or don't speak at all-and those who love them deeply....

Title : Love You to Pieces: Creative Writers on Raising a Child with Special Needs
Author :
Rating :
ISBN : 9780807000304
Format Type : Paperback
Number of Pages : 272 Pages
Status : Available For Download
Last checked : 21 Minutes ago!

Love You to Pieces: Creative Writers on Raising a Child with Special Needs Reviews

  • Sean Kottke
    2019-05-22 09:50

    Equal parts heart-breaking and inspiring, this collection of short fiction, poetry and memoir around the theme of parenting special needs children is an earnest meditation on a season of life that is sorely underrepresented in literature, and one that modern parents face with greater frequency than ever before. The selections are arranged in lifespan order and cover a wide range of special needs that may affect a child's development, from the relatively familiar (premature birth trauma, autism, Down's) to the less well-known (Angelman's Syndrome, Duchenne's dystrophy). The challenges of unconditional love in extraordinary circumstances are explored throughout, in portraits both disturbing and comforting. What this collection does better than a shelf full of parenting advice volumes is what literature does best: it tells the reader "you are not alone" in the most profound and soulful way. Teachers seeking to better understand the unprecedented diversity of today's children, parents seeking guidance in dealing with their own conflicted feelings of love and grief, and friends, family or counselors seeking to support families with special needs children will all find this book of interest. The power of literature to support individuals coping with life changes both monumental and minimal is well established in the practice of bibliotherapy. This collection provides an excellent vehicle for extending this practice to families of children with special needs.

  • dawn armfield
    2019-06-06 14:57

    One of the main reasons I wanted this book was because Michael Bérubé had an essay in it. While I had already read this essay on his blog, it still brought tears to my eyes. He is a brilliant writer and a humble father. His interactions with his son, who has Down Syndrome, are those kinds of stories that those of us who also have family members with Down Syndrome understand. They offer so much more than we expect or demand, and do so with an amazing amount of patience for us.I had trouble with some of the other essays. They disturbed me. That's not necessarily a bad thing, but they were painful to read because they involved violence or anger in a way that was aimed at the child. Yes, it's frustrating to live with a child with disabilities. Yes we get angry. That's ok. But to direct physical anger at a child and to do so with no apologies and no remorse is disturbing. It hurt to read those stories.This is a raw book. Not raw in the sense that the writing isn't good. It is superb. Raw in the sense that emotions are bared to the reader. Because of that, this can be an exhausting read.

  • Marie
    2019-05-20 11:59

    This is a beautiful, inspiring, and heart-achingly honest collection of writing about raising children with special needs. Many of the pieces are autobiographical, and a few are fiction. Any writing about children born as premature babies touches my heart and often makes me take big gulps of air.Another story that stick with me was by a mom whose son had a type of muscular dystrophy that meant he would not live beyond his 20s. Having a preemie or fragile child is worrying enough, but it's a different type of that you know will never end throughout your child's life. To know that your child will not live into adulthood truly defies understanding. Instead of worrying about the future, and how your child will do in school or in social situations, whether he or she will ever have a job or get married, instead you would want to freeze time right then and there and not even think about the future, much less allow yourself to worry about it. The very honest and brave writers in these stories and poems express not only their fears, but also their annoyance and impatience with their children.Another thing that struck me about this collection is the total inadequacy of services for people with disabilities or delays after they pass school age. The law protects children while they are in school; they must receive services. But what happens beyond that? What if they are not capable of holding down a job? Today my husband told me about the mom of a severely developmentally delayed girl who used to go to my eldest son's school. A few years ago the special ed specialists told her that her daughter was too behind to stay in the regular classroom, even with an aide. She attended a special ed program in another elementary school (which was traumatic to the girl, who loved her original school) for a couple of years. Now the mom has decided to home school her, because she feels strongly that the special ed classroom is not helping her daughter; she needs to have opportunities to be around "normal" kids.I also think about another mom of a very early, sick preemie who expressed her dismay that the school had deemed her daughter fit for "life skills" but didn't seem to think she needed to focus on academics. This same mom had previously been told that her daughter would never walk, talk, or eat, all of which skills she has mastered. To be told that the system has essentially given up on your child is a devastating message to hear. "Rachel, at Work" writes about the stages of acceptance a parent goes through as she comes to realize the truth of her child's limits, while not diminishing her value and her spark.

  • Kat C
    2019-06-08 07:06

    As a religious educator, I was excited to read this book. I had recently finished Sally Patton's Welcoming Children with Special Needs, a guidebook to including all children into our faith communities. The two books effect a certain balance--where Patton's book focuses on logistics and is exceedingly positive in outlook, this book provides emotional and often heartbreaking glimpses into the lives of special needs children, their parents and their families.This collection ranges in form from short stories to poetry to excerpts from longer works and in topics covered from cerebral palsy to autism to several lesser-known disorders. And this wasn't just a Woman's Day 'Write to us about your child' sort of exercise--the writing is polished, exquisite. And yet you'll still have to put the book down from time to time, needing a breath.

  • Clare
    2019-06-03 14:02

    I love the chapter from Michael Bérubé, but then I miss his blog posts about Jamie very much since he stopped blogging. Jamie and my son are a similar age, both with Down syndrome, and their family has such a great outlook on life. The rest of the book didn't quite work for me though. I didn't finish it, because I found many of the stories depressing. I expected something different from a book called Love You to Pieces, like maybe the joys that I've experienced. Maybe I'll have another look at it some time and see if it improves in the later essays. I know from experience that daily life with a child with special needs is not all rosy, and I know people need to be able to tell their story. It just doesn't quite fit with me.

  • Vicki
    2019-06-18 14:45

    Sometimes I get frustrated and annoyed while dealing with parents of the kids that I work with. And so consequently I like to read book like this every once in a while to remind me what a difficult job it is to be a parent to a child with special needs. Most of these stories combine excellent writing with a good description of life. A few are "artsy" and don't bother to adhere to actual experience. I was pleasantly surprised by the poetry, particularly "Severe Language Delay: In the Kitchen with my Three-Year-Old."

  • Laurie
    2019-05-29 11:03

    “The first literary collection—fiction, essays, and poetry—on raising special-needs children.”I especially liked the poignancy of Barbara Crooker’s poem “Form and Void” – “This is the only magic the mother can conjure:/ She cannot help him talk or say his name/ but they can do this together, / blow bubbles on a breezy afternoon / make a strand of hand-blown beads / to grace the throat of the lawn.”

  • Caroline
    2019-05-26 06:41

    I couldn't put this collection down. It's a wonderful mix of fiction, memoir, and poetry, from both mother and father-writers, describing their experiences parenting children with a range of special needs and illnesses. The writing is honest, thought-provoking, and poignant. It doesn't matter if these issues don't touch you closely -- this is a collection any parent could relate to and learn from.

  • Caroline
    2019-05-27 14:59

    Written mostly through a parent's eyes, these stories and poems offer honest, uplifting and even heartbreaking perspectives on being a parent to a special needs child. It helped me put my life as mom to a special needs boy in perspective.

  • Jamie Eberle
    2019-05-25 11:03

    An eye-opener. Very honest and touching stories that give true insight of the life of families with special needs kids. It gives the non-textbook accounts with coping with children with special needs and I think it would be valuable to any person in the profession.

  • Jill
    2019-05-18 13:46

    As a parent of an autistic teenager, I found these stories to be realistic take on the emotional journey of raising a child with special needs. Some were harder to read than others, but I would definitely recommend it to other parents.

  • Krista
    2019-06-11 06:50

    Great book writen by various people about real life experience of living with a child with a disability.

  • Denise
    2019-06-13 12:56

    I am really enjoying these stories. I'm not big on poems, but the stories are awesome.

  • Suzanne
    2019-06-11 07:07